What people with IBD should know

I'm often asked, “What would you tell someone recently diagnosed with Inflammatory Bowel Disease (IBD)?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mea

Comments and accusations during meals out

Having IBD or a stoma can make meals out feel daunting. You name it, we’ve probably considered (and gotten anxious about) it:

  • Leaving smells in public toilets
  • Finding something appropriate on the menu
  • Getting up to use the toilet during meals
  • The noise our intestines can make
  • Finding an outfit that’s comfortable AND nice
  • Not knowing where the bathroom is, or wanting to be seated near it...

In this blog, I talk about the usual comments we get, which are usually well-meaning, but still, very annoying! 

Then, I move on to the more interesting comments and assumptions I've had during meals out.

Check it out here.

Three of us in the picture actually have IBD, and the rest are close enough to us to understand.