What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

Why I celebrate World IBD Day every year

I have celebrated World IBD Day, which falls annually on May the 19th, for the last seven years. Even just figuring that out seems crazy. I have been raising awareness of Inflammatory Bowel Disease since March 2014. I was diagnosed with ulcerative colitis, one of the main forms of IBD, in 2007. It really doesn’t feel that long ago.

It took me seven years to talk openly about it. Partly because I didn’t really want to talk about what happened in the bathroom, or pooping into a bag, but also partly because I was always so hopeful that the next treatment, or the next surgery, would be the end of it. Then I could just get back to the life I had before.

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