What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

Series | How my ulcerative colitis impacted my mental health

Nearly dying made me look at my life and re-evaluate what was important. I felt like I could see more clearly. I knew what my priorities were. I was very aware that life is short. I wanted to practice being grateful for every day, and everything I had.

However, life with a stoma was really difficult for me. My stoma nurse was rubbish, so I had constant leaks and burnt skin. Fatigue was something that I wasn’t prepared for either.

I just felt a little lost, and I didn’t really like my life. I didn’t feel like me. I thought a j-pouch would rectify that, but then the bombshell about fertility issues following the surgery was dropped on me.

Check out the rest of this blog over on inflammatoryboweldisease.net.


Photo commissioned by Hollister Incorporated