I was diagnosed and had surgery straight away. I had an ileostomy, and the plan was to ultimately have a Jpouch.
I had to change my hours at work because the fatigue wouldn’t let me work full time anymore. I didn’t like my job. It was only ever supposed to be a temporary way to bring in money while I figured out what my next steps were going to be.
I felt like I was stuck there, because how could I look for something else when I knew I had two more surgeries on the way.
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