What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

The unpredictability of Inflammatory Bowel Disease

One of the things that I have always found the hardest to deal with is the unpredictability of IBD. The feeling of having no control. Wanting to do more to help myself, but constantly having no results from whatever I tried.

Because IBD is often progressive, it’s not abnormal to find that we have a totally new symptom. There’s a huge list of symptoms that someone with Crohn’s disease or ulcerative colitis may experience, but if we get used to “our flares”, it can still seem surprising when we get one which is out of the ordinary for us.

To read the rest of this blog, head to InflammatoryBowelDisease.net.