What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

PoPSTER | Patient preferences & current Practice for adults with steroid resistant UC

Just the other day, I was saying to a fellow IBD advocate that it felt like survey season! I don’t mind, because any opportunity to further research in the IBD space is something I will happily get involved in! Research matters, because that is how we will ultimately have quicker remission and less adverse reactions - personalised medicine is the future people!!

Back in March last year, I became part of the Patient Panel for PoPSTER – a study about steroid-resistant ulcerative colitis (UC) at the University of Sheffield. 

Now, the time has come for the latest survey to be released! The aim of this study is to explore how people with ulcerative colitis in the UK choose their treatments.

The survey takes around 20 minutes to complete and is open to all adults with ulcerative colitis in the UK. You can find out more about the survey and take part here!