What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

Frustrations of an Invisible Illness

Living with ulcerative colitis is a complicated business. There are obviously many issues we face daily, from intense pain and chronic fatigue, to constant toilet trips and debating what you can eat today. All of those things are unpleasant, but one of the things I find the most difficult is the constant fear. The fear that things may get worse at any time. Even when in remission, I would constantly find myself saying no to any plans that weren’t immediate, because “I might be in a flare again by then”.

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