Frustrations of an Invisible Illness

Living with ulcerative colitis is a complicated business. There are obviously many issues we face daily, from intense pain and chronic fatigue, to constant toilet trips and debating what you can eat today. All of those things are unpleasant, but one of the things I find the most difficult is the constant fear. The fear that things may get worse at any time. Even when in remission, I would constantly find myself saying no to any plans that weren’t immediate, because “I might be in a flare again by then”.

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