What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

Responding to negativity in the IBD community

A while back, a new member joined the #IBDSuperHeroes Facebook group and his introductory post basically said that we had it all wrong and that there was nothing super or hero-ey about us. He wrote that he had recently broken up with his partner as a result of having Crohn’s disease and that he was incredibly unhappy with his life because of his IBD.

I have seen posts like this in the past in other groups which have been met with a telling off for the negativity, but whether we like to admit it or not, we’ve all felt negative at some point or another.

Read the rest of my post over on InflammatoryBowelDisease.net

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