What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

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Blog feature:

In September 2007 I was diagnosed with Ulcerative Colitis (UC) after just 2 weeks of being very unwell. I had gone to A&E and was promptly seen, hooked up to an IV due to dehydration and whisked away for a colonoscopy. My entire colon was full of ulcers, so I was immediately admitted for IV hydrocortisone. A week later I had emergency surgery to remove my colon.

I was someone who was never sick, so being admitted to hospital, tests, surgeries, sepsis, ileus, NG tubes, being drip fed and needing a Physiotherapist to help me walk again had been pretty traumatising. I was only 19 and up to that point my life had very much revolved around me having a good time, and the only thing I’d had to worry about was a few spots on my face!

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