What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

I’d prefer reality to “sugar coating” shit

I do understand that hitting a newly diagnosed patient with worse case scenarios is not ideal, but I do appreciate some reality. It was an incredibly tough time for me mentally because I wasn’t prepared for any of it. If I had known that I had just been diagnosed with a chronic illness, which would affect much more than just my intestine for the rest of my life, and that surgery was often needed, I think it would have helped me deal with it.

Read the rest of my post on InflammatoryBowelDisease.net about how much impact not being told the brutal truth about life with IBD had on me in the first year of diagnosis.