What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

Contributing to improving care for IBD patients

It's been a while since I did any kind of personal update, but things have been happening which I wanted to share with you.

Earlier this year, I was contacted by Merakoi because I had been identified as an IBD influencer. They were looking for someone to represent the patient voice on an upcoming project, with the main aim being to design an offering which is truly of use to the patient throughout their IBD journey.

How could I say no?!

So, for the last few months, I have been working with them (and a Pharma company) as a "Patient Expert", with the ultimate objective of identifying specific areas that additional support would be useful at, for patients.

Tomorrow, I fly to Basel ahead of Friday's workshop, in which many discussions will be had about the common issues we, as Crohn's and Colitis patients, face throughout diagnosis, flares and treatment.

I'm in a very unique position, as both an active member of the IBD community, and a digital marketing professional, so it's a very exciting project to be involved in. 

It has been truly exhausting though! 

So, wish me luck! I just hope I can represent the IBD community well enough. Now, if you'll excuse me, I have packing to do!