Contributing to improving care for IBD patients


It's been a while since I did any kind of personal update, but things have been happening which I wanted to share with you.

Earlier this year, I was contacted by Merakoi because I had been identified as an IBD influencer. They were looking for someone to represent the patient voice on an upcoming project, with the main aim being to design an offering which is truly of use to the patient throughout their IBD journey.

How could I say no?!

So, for the last few months, I have been working with them (and a Pharma company) as a "Patient Expert", with the ultimate objective of identifying specific areas that additional support would be useful at, for patients.

Tomorrow, I fly to Basel ahead of Friday's workshop, in which many discussions will be had about the common issues we, as Crohn's and Colitis patients, face throughout diagnosis, flares and treatment.

I'm in a very unique position, as both an active member of the IBD community, and a digital marketing professional, so it's a very exciting project to be involved in. 

It has been truly exhausting though! 

So, wish me luck! I just hope I can represent the IBD community well enough. Now, if you'll excuse me, I have packing to do!