What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

RELIABLE resources for Crohn's and Colitis research

We live in an age where anybody and everybody is online, and they can write whatever they like. People often post statements and opinions that appear to be facts, when they are not. Bloggers are everywhere, and so are news/insight channels. Nobody is vetting the majority of these sources, and a lot of the people posting on them only know their own truth, and there is very little fact checking going on!
I am a fact checker, so I don’t post on my blog, or #IBDSuperHeroes blog unless I know something is correct. To check facts, you need to know which sources are trustworthy! I would like to urge people, any people; patients, bloggers and advocates alike to check their facts.

I would also urge you to consider the date of the information you are reading. Medical/diagnostic tools and technology are evolving so quickly that more recent studies may have been carried out which are much more accurate than those carried out just a few years ago.

Here is a list of reliable resources, please do use these if you are ever in doubt! You will notice this list contains no charities or bloggers, simply because I wanted to ensure this list would always be reliable, and even us fact-checkers can make a mistake from time to time!




















This is not a comprehensive list! Other medical information sites and medical journals exist online.