Social Media, IBD & an Ostomy

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The Mighty | Why We're Raising Awareness on World IBD Day

Posted by Sahara Fleetwood-Beresford on May 15, 2017

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Check out the article here.

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It’s official – I’m a writer now!

NEENAW NEENAW, exciting news, coming through!
I am delighted to be able to tell you all that I am now a writer on inflammatoryboweldisease.net!
I am incredibly proud of myself, which is something I very rarely get to say! I love the site, and I believe that advocacy in the US is something that we can only aspire to achieve! So, for inflammatoryboweldisease.net to think that my writing is actually good enough to publish on their site, is A.MAAZING! My articles will appear here.
For a long time, I have dreamt of being able to make a career out of supporting people on their IBD and ostomy journey, and whilst I’m not quite there yet, consider by my IBD itch, well and truly scratched!
I have added a tab to my articles to this blog, so now I just need to publish one!
Look at me... I'm a writer :D

Contributing to improving care for IBD patients

It's been a while since I did any kind of personal update, but things have been happening which I wanted to share with you.
Earlier this year, I was contacted by Merakoi because I had been identified as an IBD influencer. They were looking for someone to represent the patient voice on an upcoming project, with the main aim being to design an offering which is truly of use to the patient throughout their IBD journey.
How could I say no?!
So, for the last few months, I have been working with them (and a Pharma company) as a "Patient Expert", with the ultimate objective of identifying specific areas that additional support would be useful at, for patients.
Tomorrow, I fly to Basel ahead of Friday's workshop, in which many discussions will be had about the common issues we, as Crohn's and Colitis patients, face throughout diagnosis, flares and treatment.
I'm in a very unique position, as both an active member of the IBD community, and a digital marketing profe…

Dehydration with IBD, an ostomy or a Jpouch

Staying hydrated is really important. How much water you should drink is actually based on a number of factors such as your health, weight, the local climate and how physically active you are. Drinking too much water can actually flush out the electrolytes which you need to stay hydrated (but you would have to drink an awful lot to do this). You don't need to rely solely on water to meet your fluid needs. Beverages such as juice and herbal teas are composed mostly of water and can contribute to your daily water intake. What you eat also provides a significant portion, so fruits and vegetables, particularly watermelon and spinach, are almost 100% water by weight. That said, water still IS your best bet.
Many people like to add fruit to water, which is fine, but be aware that drinking too much lemon water can actually dehydrate you (because lemon is a natural diuretic). It may also cause other problems such as heartburn and tooth erosion because of its high acid content.
Staying hy…

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