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What people with IBD should know

Posted by Sahara Fleetwood-Beresford on June 02, 2018

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

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Huffington Post | IBD Superheroes Assemble For World IBD Day

Posted by Sahara Fleetwood-Beresford on May 19, 2017

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Ostomy leaks and samples!

When I first got my stoma, I tried a couple of different bags, and ultimately settled on Coloplast’s Sensura Mio. As I gained the weight back that I had lost due to surgery, output began to creep under the baseplate, because my stoma was created at an old stoma site, so it sits in a dip. The Sensura Mio is available in three convex levels; Soft, Light and Deep. So, I ordered some samples, and the issue was immediately fixed with the soft convex. I was pleased when I continued to gain weight because I hadn’t been happy with how slim I was for years, but a couple of months ago, I began experiencing leaks again, which I think was due to the additional weight gain, which ultimately deepened the dip even more. I had been thinking that I probably needed to start considering my diet anyway, so when the leaks started happening, I felt that now was the time. I was certain it had only been the last few lbs, so I figured I could lose those pretty easily. I did, but instead of leaving my abdomen w

How I felt when I found out that I needed a stoma

So, you’ve just been told you need a stoma. What are your first thoughts about that? Personally, I think it depends on the situation. Research also suggests that people with a permanent stoma adapt better than those who have one temporarily. I’ve had so many different feelings and emotions about having an ostomy throughout my journey with IBD; positive and negative. I wanted to share these so that you know there is no right or wrong way to feel! To read the rest of this blog, head to Fittleworth .

How and why I got back into exercise after stoma surgery

A stoma alone should not prevent you from exercising. Although, the condition which led to having your stoma might limit it a little! For me, it’s really important to keep active, but I am by no means an incredibly active person. I know I feel better with daily exercise than I do without it, but it took a long trial and error process to figure out the type of exercise and for what length of time, suited me. To read the rest of this blog, head to Fittleworth .

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