What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

Join me on The IBD & Ostomy Show, Thursday 8th of June

Exciting news! I will be on the IBD & Ostomy Support Show on Thursday 8th of June, talking all things IBD, ostomy, and of course #IBDSuperHeroes.

The show goes out LIVE on YouTube and Facebook on Thursday each week between 8 and 9pm, so let's hope they've got their bleeper ready! Essentially, it's a chat that YOU get to watch and interact with via a live chat tab on YouTube. If you would like to tune in to this week's show, visit the event page, click 'going' and then return by 8pm on Thursday and click the link in the event. Simples!

The topic will be 'other health issues related to IBD'. Ahead of the show, a poll is published for you to HAVE YOUR SAY on the topics being discussed, so if you'd like to do that, click here.

I was asked to do a quick introduction to me, so here it is...

Mine was not your typical story of being sick for a long time and having to fight for a diagnosis. For me, it all happened very quickly.

Excruciating pain, blood and diarrhoea came out of nowhere and saw me in bed, unable to move for two weeks. I slept and I went to the toilet and that was it. In those 2 weeks I lost 11lb. I went to A&E and was admitted and diagnosed on the same day. 

I have been fundraising for Crohn’s & Colitis charities and raising awareness of Inflammatory Bowel Disease for over 3 years, which led to a Pride of Britain Award in 2015. 

The current project that I run with follow J-poucher, Corinne Burns is #IBDSuperHeroes, focusing predominantly on finding a cure for IBD. 100% of donations are invested in to research via Cure Crohn’s & Colitis

You can find out all about #IBDSuperHeroes on the blog. Click around and meet the team, read other peoples stories, buy merchandise, see our mentions in the media and what we’ve been up to etc etc.

You can also visit my blog which includes contributions to Huffintgon Post UK and The Mighty.