What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

Checklist for travelling with IBD

o   Pack safe foods in hand luggage and case

o   Pack extra supplies of medication in hand luggage and case

o   Check storage information for medication, ie, if it needs to be refrigerated

o   Asked GP to provide overview of condition and medication

o   Ensure condition is covered by insurance

o   Get a copy of emergency insurance company number

o   Request a fridge at the hotel

o   Information and location for the nearest hospital

o   Pack IBD essentials such as hand sanitiser, Imodium, wet wipes

o   Pack translation cards for key phrases such as “Gluten-free” and “Where is the nearest toilet”

o   Speak to the airline about additional requirement such as specific in-flight meals and seats near the toilets

Source: Managing IBD