What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

Fatigue is my biggest issue

I usually ramble on in my blogs so I have set myself a challenge – 200 words max per blog for Crohn’s and Colitis awareness week!

IBD is mainly an invisible illness. With no physical signs of disease, it’s often difficult for people to understand how much pain you’re actually in. “But you don’t look sick” being one of the worst things you can possibly say to someone who is chronically ill. With many Inflammatory Bowel Disease sufferers also struggling with depression, PTSD, anxiety, joint problems, nausea, eye issues, fatigue and stress (the list is endless) we’re just whole heap of ‘sick’ with no visible symptoms!

I guess the general assumption would be that the main thing to be highlighted would be the amount of time one spends on the toilet. Not for me.

The pain is a bastard, don’t get me wrong, but it’s funny the things that you get used to.

The one thing I cannot get used to is the fatigue, even when I am not flaring, the fatigue feels like a constant drain. I feel like I’m not a fully functioning human being. The ability to concentrate is harder, not only at work but also for the things I enjoy in my own time like reading or writing. Keeping control of my emotions is and keeping my stress and anxiety in order seems a lot more difficult. The urge to socialise gets smaller and smaller and worst of all is that people don’t understand that just getting an early night or taking a nap won’t help!