What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

IBD | This is your life

*Alarm goes off*
Snooze twice.
Wake up still feeling exhausted.
Go to the toilet.
Wash, go through a stupidly long routine of applying different creams and mixing drinks and taking tablets.
Go to the toilet.
Go to work. Half of the days passing in an opiate blurr, the other half on autopilot being drained by fatigue. Half of the time remembering to mix mid day drinks and the other half completely oblivious to the fact that that was even necessary.
Get up numerous times to go to the toilet.
Arrive home, often after what is usually a traumatic shopping trip due to having to come in to contact with people and spend stupid money on barely any items.
Go to the toilet.
Tea time is a toss up between, eat what you fancy and eat what you're allowed and more meds.
Go to the toilet.
Fight the urge to sleep and try to concentrate on something vaguely important or productive for the evening.
Go to the toilet.
Bedtime. Mix up another drink, take more tablets, wash and apply the same creams as the morning routine, go to the toilet, stick things in places they shouldn't be stuck and fuck off to bed.
Lay awake due to pain, medications or irrelevant thoughts.
Get up numerous times to go to the toilet.
Wait for alarm and repeat.
- Sahara Fleetwood-Beresford, this is your life.