What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and som

An open letter to my fellow IBD sufferers

I may not know you but I've walked the road you're walking. I see the fear in your eyes hiding behind that sparkle. I see the sadness that weighs heavy in your heart because your life hasn't turned out quite the way you wanted. I see the pain you try to cover up with a smile and a joke.

I understand your journey. I've felt your fear. I've endured your pain. 

I've felt weakness and not asked for a hand up. I've felt tired yet not succumbed to sleep. I've felt pain but refused to scream. I've felt sadness but fought the urge to cry. I've felt the need to talk but kept my mouth shut. I've felt anger and locked it all in. I've felt defeated but carried on regardless. 

I know you're scared. 

Do not walk alone for the road is dark and narrow. 

That road you are walking, you are not walking alone. You may not see me but I am there. 

When you need me let me know and I'll show myself and walk with you. The moonlight will break through the trees and that once narrow road will widen. I'll hold the lamp and I'll lead the way xxx