Posts

What people with IBD should know

I'm often asked, “What would you tell someone recently diagnosed with Inflammatory Bowel Disease (IBD)?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information! For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over! It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic! For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mea

Grieving for my pre-IBD life

Products to support ostomates during day-to-day life

Changing seasons, chronic fatigue, and mental health

An open letter to Matthew Perry regarding his stoma experience

Leftover pumpkin uses in the garden and beyond

Attending the pain management programme - part 2

Attending the pain management programme - part 1

My relationship with IBD and sleep

Intestinal blockages with a stoma

Physio update: Body and mind, misaligned

My bladder issues following colorectal surgery

Common struggles after stoma surgery

Sleeping with an ostomy bag

Advice on new IBD medications

Break-ups and fallouts post stoma surgery

Intimacy after stoma surgery

Sleep hygiene and IBD

My experience of talking about my stoma to romantic partners