What people with IBD should know

I am often asked, “What would you tell someone recently diagnosed with IBD?” So, this is what I think you should know!

Look out for clickable links in this blog, leading to more detailed information!
For many, a definitive diagnosis is a massive relief after a long period of being unwell. This does not mean that acceptance is easy, after all, you have just been diagnosed with a chronic disease which has no cure. Do NOT panic, we’ve got this, life is not over!
It is worth pointing out that no two IBD patients’ lives are the same. The disease does not always manifest in the same way, and the fact that a treatment works for one person does not mean it will work for another. This makes IBD notoriously difficult to treat. That said, some IBD patients may have one flare, find the right medication straight away and never have another, and that is fantastic!
For the rest of us, being diagnosed with Crohn’s Disease or Ulcerative Colitis may mean some lifestyle changes and some steep learning …

Too Sick to be Social

Celebrating my achievements since stoma surgery!

The Extra-Intestinal Manifestations of Ulcerative Colitis

Responding to negativity in the IBD community

I’d prefer reality to “sugar coating” shit

Tut Tut, Butlin's!

My stoma favourites – Adhesive remover & barrier wipes

It’s official – I’m a writer now!

Are you comfortable educating people about your health?

Should I join an online support group?

Contributing to improving care for IBD patients

IBD awareness hashtags for World IBD Day 2019

Are IBD and ostomy influencers reliable?

Why “How are you?” is difficult to answer when you’re sick so often

Metro | Five women open up about how having a stoma bag has affected their love lives

My journey to stoma acceptance – 11 years, 7 surgeries and 3 ostomies later

The emotional impact of surgery

Upcoming Jpouch excision